A week ago, the chemo curls were long enough to where I pulled out my hair product and accessories. I felt like a girl again. Less than a week ago, knowing the nightmare of watching my hair fall out and me too vain to have it shaved, I went in for the hip-grandma look of what is essential a female’s butch cut. This halted some of my joy. It halted some of my fantasy that I was a normal person again—like one who doesn’t live her life around cancer every day.
When just 5% of gynecological cancers are uterine carcinosarcoma the money isn’t there for research. Furthermore, it’s not a well known form of cancer. Case in point, during a recent hospitalization I told one of the nurses about this cancer I’m fighting and she said that she had never heard of it. And when I spoke to a group of women about this cancer, they too, had never heard of it.